The Department for Health and Social Care (DHSC) has launched a review of the use of health data for research.
It will be led by Dr Ben Goldacre, head of the DataLab at the University of Oxford and adviser to the government on the use of data and technology.
The review’s terms of reference include identifying what type of technical platforms, trusted research environments and data flows are the most efficient and safe for common analytics tasks; and how can the technical and cultural barriers be overcome?
Other issues to be covered include how to build up the use of data science, expectations and responsibilities in data sharing, how to avoid access to data being subject to monopolies, data quality, data curation and the preservation of privacy.
DHSC said the review will complement the forthcoming Data Strategy for Health and Social Care.
Goldacre commented: “The UK has a phenomenal resource in its raw data, and its people. Our challenge is now in the final lap: we need to find safe, secure, collaborative and efficient ways to turn that raw data into insights and action, to improve patient care for all. There is a wealth of expertise around the country, much of it untapped.
“I’m excited to talk to people across health, social care and research about their experiences and concerns to help drive better, broader, safe use of health data.”
He invited interested parties to get in touch at [email protected].
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